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Chronic illness

3 C’s: Corona, Compromised & Coping

The whole world is in panic at the moment regarding the covoid19 pandemic or corona virus whatever you want to call it. Those with compromised immune systems are more worried than ever. We can’t go shopping without worrying about catching something. Don’t think we must now stop going to doctor appointments because that doesn’t stop either, that continues. While the world seems to be on pause our health doesn’t take a break it carries on. We are anxious and stressed out because if we get the virus it’s not months of recovery it could be a year until we have fully recovered. This is just one of the thoughts going through my head personally, my OCD and anxiety levels are off their leash. So how do I cope with this? Well here are a couple things I do to help me through times like these.

➳ Listening to music (make sure you are by yourself with no distractions if possible

➳ Breathing exercises

➳ Adult colouring in books

➳ Colouring in apps on my iphone (such as oil painting, gallery and many more)

➳ Play with my dogs

I try this before I feel or when I feel anxiety, they help me a lot and distract me from the word around me. I try to distract myself best I can but its not always easy, some days I write down all the positive things I see in my life on that day some days it’s a lot of things and others not so many. Reading back on them makes me realize how lucky I am and also brings that spark of positivity back into my days.

Categories
Chronic illness

Sepsis??

A follow up on Push yourself. I know it was more for a two stories in one so I thought I would separate the two and go into more detail.

So the dog bite that I got in September 2019 got septic, I had some idea of what it meant. All I knew is that it was a life or lose situation, you are probably thinking doesn’t she mean death, and nope I mean lose. If I didn’t get the sepsis removed I would have lost my arm. I got admitted and the surgeon saw me and organized me to be operated on the next day. It was a really weird experience having your arm operated on and having to do wound care for 2 months, thankfully my mom was there to help with the would care part as it was on my upper right arm so I couldn’t clean the wound myself. Luckily I didn’t get any stitches but that meant open wound and more risk of infection so I had to be very careful. I missed two prelims but was luckily enough to not have to repeat matric, or have not writting the two exams mess up my marks. Two months forward I had to write my finals, which I was prepared for. Towards the end of my exams I got a bladder infection which for me usually come often, but this time my bladder infections just got worse than my previous one (basically it didn’t go away just got worse). My GP suggested we make an appointment to go see a urologist in the new year but it just got worse so after finals were over I got to see the urologist and be admitted into hospital for more tests as bladder conditions are quite common with lupus so to rule anything out that could cost me my bladder they did a cystoscopy which is a bladder scope and needless to say my results were less than normal…

Stay tuned for a follow up post.

Categories
Chronic illness

Push yourself

High school, they say you will want to go back once you’ve finished but for me, I definitely do not want to go back. Why? you ask well because I did grade 10 twice and grade 12 over two years by splitting up my subjects (unevenly). It was a long road to finish high school, in my last year I was really sick and in that same year my aunt passed away from cancer. So out of all of my years of finishing high school, I must say 2019 sucked.

Despite everything, I still pushed on. In 2019 about the second week into September, I got bitten by a dog on my right arm close to the main artery the doctor said if the dog had just gone 1cm to the right the dog would have pierced my artery and if you have watched greys anatomy that is not good. I went straight to GP to get my tetanus shot and to get antibiotics as I know I get infections quickly. It wasn’t my usual GP so when I told him I had Lupus and RA he put me on such a high dose of antibiotics (so I wouldn’t get an infection). Never the less my body decided no thanks we don’t need these antibiotics lets give her an infection, so my flare started which usually means an infection starts. So the usual thing that I suspect is a bladder infection when they came back clear and I didn’t have a cold we just left it. Then I started feeling really weird, was dizzy and was just not feeling myself. My GP suggested that we see a Urologist in 2020 and we agreed to do so. My bladder infection next went away in fact it just got worse so we planned an emergency appointment with a Urologist because it was December and not many doctors are free then, but luckily we got to see one. She admitted me for a day at the hospital to do a cystoscopy and a bladder biopsy. The results were worse than we thought…

Categories
Chronic illness

Let’s sell some shirts

In order to help my parents with the cost of some of my medical bills, I decided to design a T-shirt logo that would spread the awareness of Rheumatoid arthritis (RA) as well as a nice fashion statement. It didn’t take me long to decide what I wanted it to look like so I sent my design to the person helping me print the shirts with a little tweaking we had two shirt designs. One for people with RA and another for those who want to help spread awareness.

Its R190 per shirt please WhatsApp me your order @ 0814259056 free delivery & collection if in the PTA east area. Can’t wait to hear from you.

All the money made from the shirts will go towards the costs of my medical bills.

Below you will see a picture of my first buyer 🙂 wearing the awareness shirt and then me below as well wearing the tougher than one. The shirt material for the ladies has such an amazing feel and for someone who has sensitive skin its amazing plus it looks good too. This is the old design but after the two pictures you will find the new design 🙂 <3

Categories
Chronic illness

Highly not recommended

My Ex-boyfriend constantly used to tell me how he wishes he could be the one carrying the pain and not me. As much as it would be nice to not be in pain I would not wish this pain on my worst enemy. Taking a year to diagnose something that you struggle with is not something anyone should go through let alone a 15-year-old.

Over 20 doctors later I was finally diagnosed, it took 4 CAT scans, 1 MRI, a ton of blood tests and many sonars. I changed my diet, tried light exercise as well as acupuncture. We tried everything to try to help the pain that I was experiencing when I was ready to throw in the towel, we saw my current specialist I remember being sour and hopeless during the appointment because I didn’t want to be disappointed again. I was in for the shock of my life when she told me she knew what was wrong. I was diagnosed in her consulting rooms with Rheumatoid arthritis (RA) but to start treatment and be 100% sure that I have RA. My diagnosis journey was a long one, one I would not recommend and not wish upon anyone. Stay tuned for how I dealt with this diagnosis and the other diagnoses.

One of my first hospital visits under my rheumatologist .
Categories
Chronic illness

The Life I deserve

Chronic illness has taken more things from me than I care to count. I’ve lost friends, experiences, my health and so much more I could probably write a book. Looking back at what I’ve lost doesn’t change anything it has happened and that is that. Right now all that matters is the life I have and try to turn it into the life I deserve. We deserved to be loved no matter what our Patient file says, many people run away when they hear that I am chronically ill. In the beginning it used to bother me because I thought something was wrong with me and that no one will ever love me because of my illnesses but was I wrong. Those who ran away just couldn’t handle my superpowers aka the way I handled things and I am glad I didn’t chase after them because it wouldn’t be worth it. The people I have in my life currently are the ones I deserve, the ones that make me feel loved and cared for, the ones that look out for me and check up on me. The life I have now is the one I deserve and yes I do miss out on the normal things a young adult gets to do but it is not the life for me and I have come to realize that. It took me a while but I am happy with the life I have now despite its many challenges. I wouldn’t want to be a normal young adult.

Categories
Chronic illness

Hello world!

This is my very first blog post, I hope you found it help feel free to give me a follow on Instagram.